Scientists conducted a cross-sectional study on the endocrine manifestations of 29 adults with SMA types 2, 3, or 4, at a ...
“Alyssa, this is the best you’ve ever looked to me,” my gastroenterologist recently exclaimed during a routine appointment. Though I hadn’t felt my best internally, I took her word for it. After all, ...
A move to a new home is not without challenges, but installing a vertical platform lift solves a big one, columnist Ari ...
Muscular Dystrophy Association (MDA) is the #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and over 300 related neuromuscular conditions. For ...
Kevin Schaefer, who lives with SMA type 2, and neurologist Edward Smith, MD, reflect on their preferences for how to go about discussing difficult care decisions or bad news. Dr. Smith: I don’t think ...
Rio Landa, physician whose 14-year-old son, Mateo, is diagnosed with spinal muscular atrophy (SMA) type 2, describes her approach on seeking second opinions or voicing concerns about changes in SMA ...
Columnist Helen Baldwin describes the destruction from Hurricane Helene and comments on the resilient spirit of people facing ...
The babies were treated before symptom onset, and are sitting, standing, and walking independently, many consistent with ...
As his 31st birthday approaches, columnist Kevin Schaefer reflects on how he goes at his own pace while living with SMA.