As a person with cystic fibrosis who can’t benefit from modulators, I believe it is my responsibility to use my position on a Cystic Fibrosis Foundation research committee to advocate for others like ...
Each year, researchers and care team members gather at the North American Cystic Fibrosis Conference to share their research on how to improve the lives of people with cystic fibrosis. The three ...
Growing up with cystic fibrosis made it difficult for me to have hope for the future. However, thanks to a healthy combination of physical and mental health medications, I now have so much to look ...
Before my son was diagnosed with cystic fibrosis, my life lacked a profound sense of purpose. I did the typical routine a wife and a mom of three does. When I did have time for myself, I’d upload ...
New clinical guidance was created to help cystic fibrosis care centers care for people with CF as they face a widening range of health needs. The guidance covers how and when routine CF care is ...
The Foundation prohibits discriminatory or harassing behavior or speech directed toward individuals because of protected characteristics. The Foundation also prohibits bullying, which includes ...
Reporting misconduct helps to promote and maintain an inclusive, respectful, and safe environment. The Foundation has outlined the process for reporting and investigating violations of its policies or ...
The Cystic Fibrosis Foundation assembled a panel to summarize available evidence, synthesize expert opinion, and provide clinical guidance for the composition of the care team at an accredited CF ...