As a person with cystic fibrosis who can’t benefit from modulators, I believe it is my responsibility to use my position on a Cystic Fibrosis Foundation research committee to advocate for others like ...
Each year, researchers and care team members gather at the North American Cystic Fibrosis Conference to share their research on how to improve the lives of people with cystic fibrosis. The three ...
Growing up with cystic fibrosis made it difficult for me to have hope for the future. However, thanks to a healthy combination of physical and mental health medications, I now have so much to look ...
Before my son was diagnosed with cystic fibrosis, my life lacked a profound sense of purpose. I did the typical routine a wife and a mom of three does. When I did have time for myself, I’d upload ...
More potential CFTR modulators are in development to address the underlying cause of the disease in people with other CF mutations. The CFTR protein regulates the proper flow of water and chloride in ...
This site contains general information about cystic fibrosis, as well as personal insight from the CF community. Opinions and experiences shared by members of our community, including but not limited ...
Have you ever wondered if there was something else going on with you? Something else affecting you that you were not aware of? Well, I felt that way. Ever since I was young, I have always struggled ...